Prayers needed!

Hi,

I haven't been on my blog since my last post, conjuring up the energy to do anything is really hard.  I just want to sleep...all the time.  I am home from the hospital and although I am not as horribly sick as I was, I am still very ill.  John took me to the ER at 1am the night before to confirm what I thought was going on...a blood clot in my left arm.  It doesn't end.  I am exhausted, in pain, uncomfortable, sore, lonely, anxious, sleepy, dissapointed, confused, hopeful, nauseated, and weak. 

I have so many stories and maybe I will even blog about them while stuck here in bed.  Everything from an ambulance literally taking me 100 feet to the hospital (that bill will sting). To having a heart episode, pressing the nurse button and having medical staff come in...GASP and run out.  NO one helped me, it was one of the scariest experiences in my life and why I will never ever go back to the ER.  To having my mom's brand new car egged when we left the hospital, to the frustration of so many unanswered questions.  It has been an ordeal to say the least.

I have been totally overwhelmed with all the love and support.  I am REALLY bad at asking for help but am trying to be better especially now that I have Johnny.  Not being able to take care of him has been a big component of my depressed mood.  I hate that I am sick and cannot even tuck him in at night.  I have been beyond emotional.  Friends have offered a zillion meals and I was so hesitant and my friend Gina just basically told me it was happening.  Our neighorhood is bringing three meals + a toddler meal every night for the next couple weeks.  Johnny goes to daycare a couple hours a week and they have taken him on full time for next week.  Either my parents or John's parents have been watching Johnny and/or taking care of me every minute. The cards, the flowers, the care packages, emails, texts...everything has been lifting my spirits.

Three ambulance rides, 5 ER visits and a long hospital stay on a high risk floor is going to be outrageously expensive.  Our friends and family have even come to together to figure out how to help us out with that.  I am not sure how much it is all going to cost but at this point I would imagine it's up to $60,OOO dollars and we just need to see how much insurance will cover.

I am still a mystery and they released me from the hospital with higher white blood count than I had the day before---but still not too high.  They were convinced I had all these scary aliments and that caused me a lot of anxiety.  They have ruled out a lot, but frustrating that they don't still understand it all.  I really appreciate so many blogger's trying to diagnois me and help me.  I am pretty much open to anything and everything at this point, so here goes:

I have pneumonia and was coughing up blood and all the horrible things were ruled out.  I need the nebulizer breathing treatments, but had adverse cardiac reactions to all of the treatments they attempted to give me.  I have had 4 chest x-rays, three cat scans and a high resolution cat scan.


My thyroid levels are out of whack, but not enough to medicate.


My blood pressure went dangerously high and paramedics couldn't not get pulse.  Since then blood pressure has been fine but heart rate just random really high sinus tachycardia...even when sleeping. 


Oxygen all over the place.


I have thrush and am hoping a lot of my symptoms are from the Candida


Blood clot left arm.


Extreme sinus pressure that comes and goes...sinuses are congested but no infection.


They were convinced I had an adrenal tumor, but I was tested for that last year.  My pituitary was under active so I will get an MRI when I am feeling a tad better.


Never had a fever with any of this, but I get really flushed and feel cold and shake.


Night sweats, painful joints, exhaustion, coughing, burns when I breathe sometimes, nausea, vomiting, occasional headache, bad sinus pressure, blocked Eustachian tubes, negative ear pressure, extreme thirst and urination.

I am really hoping that I just was getting over that sinus infection that wasn't treated for so long...then had pneumonia for awhile not realizing it.  That my tubes are blocked and most of these other symptoms are from all these medications mainly the antibiotics and the Candida.  So many of you without medical problems have told me stories about spending WEEKS in bed with pneumonia.  Maybe my heart just freaked out being so sick and dealing with all of this and I am just pretty darn sick and need to rest and will get better soon.

I feel so silly writing out my symptoms, but enough people asked/emailed I actually thought it was a good idea. You never know who can help you sometimes.